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Functioning and health-related quality of life of adolescents with cerebral palsy: self versus parent perspectives

Posted on April 29th 2010
Aim To determine whether there is a difference between perspectives of functioning and health-related quality of life (HRQL) of parents and ambulatory adolescents with spastic cerebral palsy (CP).Method A total of 139 parent patient pairs (73 females, 66 males; median age 14y 6mo, age range 11[ndash]18y, Gross Motor Function Classification System [GMFCS] levels I[ndash]III, with hemiplegia [n=23], diplegia [n=103], triplegia [n=9], and quadriplegia [n=4]) were recruited from outpatient CP clinics at three pediatric orthopaedic hospitals, between 2000 and 2006, from whom Pediatric Outcomes Data Collection Instrument (PODCI) responses were collected.Results Cross-sectional data, calculated with intraclass correlation coefficients [ICC], showed parents and adolescents agreed more on functioni...

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