Research CommentaryâChallenges for Parents and Families: Demands of Caregiving of Children With Chronic Conditions
GROWING UP WITH a chronic condition or physical disability is challenging for both children and their families (). Families manage their child’s care and the complex treatment regimen associated with the child’s chronic condition on a daily basis. It is important to note that families provide the majority of care for children with chronic conditions at home. This shift in caregiving of children with chronic conditions to home care has created additional demands on parent caregivers and families. Managing the child’s chronic condition at home may create stress and burden related to the child’s daily care, coordinating specialty health care, and interfacing with a variety of systems, such as schools, insurance companies, and government agencies, in the family’s environment (). There is evide…
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